Intermarriage Spurs
Tay-Sachs Advisory
Citing rising Jewish intermarriage rates, the leading organization devoted to combating Tay-Sachs is urging doctors to encourage the use of more comprehensive testing... Read More. . .
Four year old Filipino boy affected with
Tay-Sachs Read More..
Test, and Then Test Again, Experts Advise
With additional mutations for genetic diseases continuing to be discovered among Ashkenazi Jews, genetic screening advocates are urging people to get tested for newly identified diseases... Read More . . .
Tay-Sachs, MSUD Added to
Social Security List
The Social Security Administration has added two genetic diseases that affect Ashkenazi Jews to its Compassionate Allowances list... Read More. . .
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals. Read More...
Research Update
Tay-Sachs Gene Therapy Research Project Progress Update - September 2011
The TSGT consortium continues to make excellent progress and is on schedule to meet the accelerated timeline of initiating the clinical trial in the second half of 2012. The following is a summary of the different activities and developments in the last 6 months. Read More . . .
Goal Set to Accelerate Tay-Sachs Gene Therapy Consortium Timeline by One Year
The Tay-Sachs Gene Therapy (TSGT) Consortium recently had its first discussion with the Food and Drug Administration (FDA) about the drug development and clinical trial plan. The FDA was positive about the proposed plan. Funding for the clinical trial and necessary additional studies has yet to be secured. The TSGT will continue to work closely with NTSAD, family foundations and other funding sources to raise an additional $300,000 by the end of 2011. Read More . . .
Sick Texas Sheep May Aid Tay-Sachs Fight
Fred and Joan Horak have been ranchers since 1985, so 11 years ago, when Joan noticed that two lambs from her flock had tilted heads and wobbly legs, she knew something was amiss. Little did the Horaks know that their discovery of these two sick lambs would end up providing new hope in the search for a treatment for a deadly genetic disease that afflicts humans. Read More . . .
PSA to Help Raise Awareness for Genetic Disease Prevention
This PSA encourages couples to speak with a genetic counselor before pregnancy, highlighting Tay-Sachs as one example of a preventable genetic disease. NTSAD co-produced this public service announcement with Boston University School of Public Health.
A 13 minute short film designed to help educate and create awareness about Jewish genetic diseases and the importance of being tested.
A short film about Jewish Genetic Diseases. [Click picture to play]
A slide show of the young attendees at the annual NTSAD (National Tay-Sachs and Allied Diseases) Conference. St. Petersburg, Florida. April 2010. There were many newly diagnosed children at the conference.
National Tay-Sachs and Allied Diseases (NTSAD) Annual Conference, April 2010.
[Click picture to play]
Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.
Sick Texas Sheep May Aid Tay-Sachs Fight
