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Media Coverage

JGDC
A 13 minute short film designed to help educate and create awareness about Jewish genetic diseases and the importance of being tested.
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Four year old Filipino boy affected with Tay-Sachs
Statistically, most individuals affected by Tay-Sachs are of Jewish, French Canadian or Cajun descent. Gavin is of Filipino descent.
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Extraordinary Measures
Movie inspired by true story of John Crowley, past NTSAD president
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Daughter Inspires Dad's Quest for Cure
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Living With LOTS, S.F. Woman Won't Let Disease Win
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NTSAD-Make a Donation

The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals. More...

Research Update July 2010

The Tay-Sachs Gene Therapy Consortium (TSGT) has issued a research progress report for public release which contains some very encouraging news. In order to advance gene therapy treatment to human clinical trials, evidence is needed that the treatment works on small and large animal models. More...

In April, the NTSAD Research Initiative Committee announced 5 new grants totaling one-half million dollars for 2010. This is the largest dollar amount that has been funded in the Research Initiative's history and is the first time that multi-year grants have been awarded: 4 of the 5 grants are two-year grants. More...

 

NTSAD Family Foundations

The Evan Lee Ungerleider Foundation (ELUF) The Harry Hoffman Fund The Cameron & Hayden Lord Fund

NTSAD Affliiations

NTSAD New York Area is the chapter of NTSAD serving New York, New Jersey and Connecticut

Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.

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