about us

Our Mission

The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals.

The strategies for achieving these goals include:

• Direct, fund and promote research to develop treatments and cures
• Provide comprehensive information, referral and support services to affected individuals and families, as well as the public at large
• Promote prevention through public and professional education, awareness and carrier screening
• Lead advocacy efforts as the recognized authority for this family of genetic disease

Our Vision

NTSAD will accomplish its mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals.

The National Tay-Sachs & Allied Diseases Association will:

• Fund and promote research to develop treatments and cures
• Provide comprehensive support services to affected families and individuals
• Guide prevention, education, awareness and screening
• Lead advocacy efforts as the recognized authority for this family of genetic diseases.

The related genetic diseases include over 50 lysosomal storage diseases and over 40 leukodystrophies