Genetic Diseases
News & Events
Related Links
Carrier Screening
Media Coverage

Justices, 9-0, Bar Patenting Human Genes
Read More. . .

After Patent Ruling, Availability of Gene Tests Could Broaden
Read More. . .

Our Genes, Their Secrets
Read More. . .

Study Looks at Irish Risk for a Rare Fatal Disease
Read More. . .

Into the Wilderness: Parenting a Terminally Ill Child
Read More. . .

Local Family Searches For Cure For Rare Disease
Read More. . .

Notes From A Dragon Mom
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Supporters come out for Emma's 5K Walk
Read More. . .

Daughter Inspires Dad's Quest for Cure
Read More. . .

Intermarriage Spurs
Tay-Sachs Advisory

Citing rising Jewish intermarriage rates, the leading organization devoted to combating Tay-Sachs is urging doctors to encourage the use of more comprehensive testing...
Read More. . .

Four year old Filipino boy affected with

Read More..

Test, and Then Test Again, Experts Advise
With additional mutations for genetic diseases continuing to be discovered among Ashkenazi Jews, genetic screening advocates are urging people to get tested for newly identified diseases...
Read More . . .

Tay-Sachs, MSUD Added to
Social Security List

The Social Security Administration has added two genetic diseases that affect Ashkenazi Jews to its Compassionate Allowances list...
Read More. . .



The NTSAD New York Area Chapter is in the process of transitioning its administrative responsibilities to the NTSAD National Organization in Boston. Education and Fundraising activities will continue in the New York Area, but all communications and donations will be processed through the Boston office. Therefore, please direct your donations and communications on behalf of the NTSAD New York Area to the National Office in Boston.

Anything received at the New York Office will be forwarded to the Boston Office.

•  Thank you for your continued support  •


NTSAD New York Area Office:
1515 Route 202 #90
Pomona, NY 10970
NTSAD National Office:
2001 Beacon Street #204
Boston, MA 02135
Phone: 617-277-4463 or 800-906-8723 • Fax: 617-277-0134
Website: www.ntsad.org Email: info@ntsad.org


The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals. Read More...

NTSAD Family Fun Walk & Carrier Screening - a Hugh Success!
Irish turn out for Tay-Sachs screening in Pearl River, NY

Read more


If You Are Irish
Your Family May Be At Risk For Tay-Sachs Disease
Click for more information


Awareness for Genetic Disease Prevention

A short film about Jewish Genetic Diseases.
[Click picture to play]
click to learn more and to view film trailer


NTSAD-NY Family Foundations

The Evan Lee Ungerleider Foundation (ELUF) The Harry Hoffman Fund The Cameron & Hayden Lord Fund

NTSAD-NY Affiliations

Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.

Help our First Giving supporters raise money for NTSAD with their individual projects:

Spin for a Cure!

  Melissa & Rebecca
  Jason Roden
  Jake Hoffman