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Media Coverage

Justices, 9-0, Bar Patenting Human Genes
Read More. . .

After Patent Ruling, Availability of Gene Tests Could Broaden
Read More. . .

Our Genes, Their Secrets
Read More. . .

Study Looks at Irish Risk for a Rare Fatal Disease
Read More. . .

Into the Wilderness: Parenting a Terminally Ill Child
Read More. . .

Local Family Searches For Cure For Rare Disease
Read More. . .

Notes From A Dragon Mom
Read More. . .

Supporters come out for Emma's 5K Walk
Read More. . .

Daughter Inspires Dad's Quest for Cure
Read More. . .

Intermarriage Spurs
Tay-Sachs Advisory

Citing rising Jewish intermarriage rates, the leading organization devoted to combating Tay-Sachs is urging doctors to encourage the use of more comprehensive testing...
Read More. . .

Four year old Filipino boy affected with
Tay-Sachs

Read More..

Test, and Then Test Again, Experts Advise
With additional mutations for genetic diseases continuing to be discovered among Ashkenazi Jews, genetic screening advocates are urging people to get tested for newly identified diseases...
Read More . . .

Tay-Sachs, MSUD Added to
Social Security List

The Social Security Administration has added two genetic diseases that affect Ashkenazi Jews to its Compassionate Allowances list...
Read More. . .

 


 

The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals. Read More...



Produced by NTSAD with
a grant from Genzyme
click to learn more and to view film trailer



Emily Rapp, author of The Still Point of the Turning World
A memoir of her life with her son Ronan who had Tay-Sachs Disease was interviewed on the TODAY SHOW - Click book to view interview

*LOVE Event* to honor Emily & Ronan Raises $12,000 for NTSAD Read more about this event and donate

A slide show of the young attendees at the annual NTSAD (National Tay-Sachs and Allied Diseases) Conference, April 2012.

PSA to Help Raise Awareness for Genetic Disease Prevention

This PSA encourages couples to speak with a genetic counselor before pregnancy, highlighting Tay-Sachs as one example of a preventable genetic disease. NTSAD co-produced this public service announcement with Boston University School of Public Health.

A 13 minute short film designed to help educate and create awareness about Jewish genetic diseases and the importance of being tested.
A short film about Jewish Genetic Diseases.
[Click picture to play]

NTSAD-NY Family Foundations

The Evan Lee Ungerleider Foundation (ELUF) The Harry Hoffman Fund The Cameron & Hayden Lord Fund

NTSAD-NY Affiliations

Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.


Help our First Giving supporters raise money for NTSAD with their individual projects:

Spin for a Cure!

  Melissa & Rebecca
Heringer
  Jason Roden
  Jake Hoffman
  Justin
Ungerleider
  Daryl
Marx
  Stacie
Handwerker
  Susan
Donner
  Ross
Plumer
  Justin
Shay
  Greg
Weil