Genetic Diseases
News & Events
Related Links
Carrier Screening
Media Coverage

Justices, 9-0, Bar Patenting Human Genes
Read More. . .

After Patent Ruling, Availability of Gene Tests Could Broaden
Read More. . .

Our Genes, Their Secrets
Read More. . .

Study Looks at Irish Risk for a Rare Fatal Disease
Read More. . .

Into the Wilderness: Parenting a Terminally Ill Child
Read More. . .

Local Family Searches For Cure For Rare Disease
Read More. . .

Notes From A Dragon Mom
Read More. . .

Supporters come out for Emma's 5K Walk
Read More. . .

Daughter Inspires Dad's Quest for Cure
Read More. . .

Intermarriage Spurs
Tay-Sachs Advisory

Citing rising Jewish intermarriage rates, the leading organization devoted to combating Tay-Sachs is urging doctors to encourage the use of more comprehensive testing...
Read More. . .

Four year old Filipino boy affected with

Read More..

Test, and Then Test Again, Experts Advise
With additional mutations for genetic diseases continuing to be discovered among Ashkenazi Jews, genetic screening advocates are urging people to get tested for newly identified diseases...
Read More . . .

Tay-Sachs, MSUD Added to
Social Security List

The Social Security Administration has added two genetic diseases that affect Ashkenazi Jews to its Compassionate Allowances list...
Read More. . .




NTSAD New York Area Office:
1515 Route 202 #90
Pomona, NY 10970
NTSAD National Office:
2001 Beacon Street #204
Boston, MA 02135


The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives. We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals. Read More...

In loving memory

Frances Berkwits, MS, CSW
August 19, 1922 - June 29, 2014

It is with great sadness that a shining light has gone out in our NTSAD family.

Our beloved Fran Berkwits passed away, just seven weeks before her 92nd birthday. Fran was active and involved - it was just her time to leave. Though we will all miss her so very much, we wish that she will rest peacefully. It has been an honor to know and work with her all these years. Fran was a special friend and mentor to so many. She was a pioneer in the field of genetic counseling, in community screenings for prevention of Tay-Sachs and related diseases, and worked tirelessly with NTSAD families for more than 50 years. As a member of the NTSAD National Board, the NTSAD Scientific Advisory Committee, and as genetic counselor and Board member of NTSAD New York Chapter she really made a difference. She was there from the beginning and NTSAD could not have done it without her.

Save the Date - Family Fun Walk

SUNDAY, September 7, 2014
Pearl River, New York

In Honor of Danny Ambrose Kenny
who is battling Tay-Sachs Disease
Read more

If You Are Irish
Your Family May Be At Risk For Tay-Sachs Disease
Einstein-Philadelphia's Irish Tay-Sachs Disease
Carrier Research Project - at the Walk
Click for more information

Awareness for Genetic Disease Prevention

A short film about Jewish Genetic Diseases.
[Click picture to play]
click to learn more and to view film trailer


NTSAD-NY Family Foundations

The Evan Lee Ungerleider Foundation (ELUF) The Harry Hoffman Fund The Cameron & Hayden Lord Fund

NTSAD-NY Affiliations

Disclaimer: National Tay-Sachs & Allied Diseases Association (NTSAD) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. In all cases, the NTSAD recommends that you consult your own physician regarding any course of treatment or medication.

Help our First Giving supporters raise money for NTSAD with their individual projects:

Spin for a Cure!

  Melissa & Rebecca
  Jason Roden
  Jake Hoffman